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Showing posts with the label childhood cancer

Fundraising

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School Cup for Community fundraising  Richards Wish Family Fun Day James and I (pre speech!) Pimms and my a few of my lovely friends Vintage Stitch Raising money for CLIC since before Christmas with the Betsy Owl. So far has raised hundreds of pounds. Face Painting Family and friends James, Lucy and I Fundraising. From our first week in Exeter where I met our CLIC social worker, I knew fundraising would be a big part of our journey.    My friends had organised a cake sale which had raised over £3000 and had also signed up to do the commando challenge.   When our CLIC social worker mentioned a named fund, I set this up for CLIC.   It was nice to be able to add gorgeous photographs and updates on Elizabeth’s treatment.   It also passed the time while in hospital.   To date Elizabeth has raised £5075.   We have kept it has a fund in her memory so that people can choose which charit...

Grave

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August 2018 Funeral Flowers 22nd April 2018 June 2018 Grave How often should you visit the grave of your loved one? A question I have asked for many years.   Personally, I have never felt the need to visit a grave and have instead always preferred to look back at photos or sit quietly and have a think about all the memories I have of that person.   By not visiting the grave has never meant that person has not been in my thoughts.   However, when Elizabeth died I have found it reassuring to visit her almost every day.   Maybe it’s because I was with her when she died, I held her after she had died and visited her in the chapel of rest.   I know that she is snuggled in her beautiful pyjamas with her favourite blanket, clutching her favourite rabbit comforter and snuggled up with bunny which matches her friends.   When I visit the grave, I can picture her looking comfy and I can imagine holding her. As we enter our 5 th month withou...

Biff's Battle Book update

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At the beginning of my book Biff's Battle I remember saying that I loved writing but had never thought I would write a book! So pleased that I managed to get it published and so pleased to have raised money for Little Bridge Hospice and Grace Kelly Ladybird Trust.  I am so pleased that people know more about Elizabeth's journey.  The idea of a blog came from the CLIC team. So many people have asked me how did I cope? I always say it was hard and I missed the children so much, but on the other hand I got to have one on one time with Elizabeth.  We cuddled, we played, watched television and chatted to the nurses.  We also had plenty of visits and presents too! Ever since Elizabeth was diagnosed in June 2017, I never took a moment for granted with any of the children.  When a consultant tells you that your child will die within the next 2 years, a child who has been nothing short of perfect since she was born, it makes you realise that you have to grab ever...