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Showing posts with the label rhabdoid cancer

Biff's Battle Book update

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At the beginning of my book Biff's Battle I remember saying that I loved writing but had never thought I would write a book! So pleased that I managed to get it published and so pleased to have raised money for Little Bridge Hospice and Grace Kelly Ladybird Trust.  I am so pleased that people know more about Elizabeth's journey.  The idea of a blog came from the CLIC team. So many people have asked me how did I cope? I always say it was hard and I missed the children so much, but on the other hand I got to have one on one time with Elizabeth.  We cuddled, we played, watched television and chatted to the nurses.  We also had plenty of visits and presents too! Ever since Elizabeth was diagnosed in June 2017, I never took a moment for granted with any of the children.  When a consultant tells you that your child will die within the next 2 years, a child who has been nothing short of perfect since she was born, it makes you realise that you have to grab ever...